NEWSLETTER: MARCH 2025

ENDOMETRIOSIS AWARENESS MONTH

The Australian Coalition for Endometriosis have spent Endometriosis Awareness Month, March 2025, advocacting for a commitment to ACTION on Endometriosis and Pelvic Pain in Australia. A brief snapshot of some activities that ACE engage with is shown below:

Parliamentary Friends of Endometriosis Gathering, Parliament House, Canberra, 24 March 2025

The Parliamentary Friends of Endometriosis Event was well attended by both sides of Federal Politics, both parties affirming the bipartisan support for Endometriosis in Australia.

Qendo Long Lunch, 15 March 2025, Brisbane.

Attendees to the Long Lunch raised funds for Qendo while raising awareness about endometriosis and pelvic pain.

The Australian Coalition for Endometriosis conducted the Queensland Priority Setting Roundtable which will inform its national report to the Australian Government.

Gold Coast Women’s Week Awards, March 2025

ACE Chair, Jessica Taylor delivered the keynote address at the Gold Coast Women’s Week Awards where she spoke about endometriosis and resillience. Pictured with Meghan Scanlon.

Queensland Women’s & Girls Health Showcase, March, 2025

Kate Fisher (ACE Manager, Partnerships and Business Development) spoke at the Queensland Women’s and Girls Health Showcase. She is pictured speaking from the consumer perspective on endometriosis diagnosis and treatment in Australia.

endo ME triosis : Art Competition, 11 March 2025, Sydney

The endoMEtriosis art competition was held in Sydney on 11 March 2025. ACE Chair, Jess Taylor thrilled to witness these amazing peices of art. It offered the opportunity for artists to creativley express their stories of endometriosis through creative expression. 1st place was awareded to Marcy D’Souza for “Self-portrait with endometriosis on a work day” and the People’s Choice winner was Rosalie Duiligal’s “Sad Clown”.

Canberra Endometriosis & Pelvic Pain Expo, 22 March 2025

The Canberra Endometriosis and Pelvic Pain Expo was held on Saturday 22 March and featured exhibitors, academics, authors, advocates, clinicians, carers, and allied health professionals.

The Australian Caolition for Endometriosis ran the ACT Priority Setting Roundtable at this event captured a vast numb er of perspectives on how endomtriosis impacts individuals, whats working? whats not working? What needs to change? And what are the co-morbidities?

SECTOR UPDATE: WEBINAR

CANNABIS, ENDOMETRIOSIS & PELVIC PAIN

Associate Professor Mike Armour, PhD from NICM Health Research Institute, Western Sydney University

Mike’s research focuses on menstrual health literacy, dysmenorrhea, pelvic pain and endometriosis. He has a specific interest in non-pharmaceutical management of endometriosis symptoms, including the use of medicinal cannabis, herbal medicine and acupuncture.

In this webinar, he discusses his current research and why people are considering cannabis for endometriosis and pelvic pain.

The EndoCann Trial

In this webinar, Associate Professor Mike Armour explains that he is leading the EndoCann Trial and why?

The research team are seeking participants to be involved in a clinical trial examining the efficacy and safety of two different medicinal cannabis interventions in people with endometriosis and associated pain. The study will also explore if the tested interventions reduce other symptoms of endometriosis, improve quality of life, and effect endometriosis lesion size.

Endometriosis a chronic inflammatory condition characterised by the presence of endometrial-like tissue outside of the uterus in the form of lesions. Many people with endometriosis find it difficult to achieve good pain and symptom control with conventional treatment strategies. Due to poor pain control, people with endometriosis turn to self-managing symptoms, including using cannabis.

The research team will be testing a CBD only oil compared to a balanced THC:CBD oil. The third group will receive a placebo oil that looks and tastes the same as CBD oil but doesn’t have any active components. All products will be provided free of charge.

For more information visit: https://westernsydney.edu.au/nicmhri/research/participate-in-research/endocann_study

UPCOMING EVENTS

Please register for the following State and Territory Priorty Setting Roundtable Events by becoming an Individual Supporter of The Australian Coalition for Endometriois, here:

https://www.acendo.com.au/membership

SAVE THE DATE:

PRIORITY SETTING ROUNDTABLES

  • NORTHERN TERRITORY: ONLINE: Wednesday 29 APRIL 6pm, (NT TIME) (TBC)

  • SOUTH AUSTRALIA: ONLINE: Wednesday 30 April, 1230pm (SA TIME) (Time TBC)

  • WESTERN AUSTRALIA: ONLINE: Monday 6 May 6pm, (WA TIME)

  • TASMANIA -IN PERSON: Monday 12 May 6pm, Hobart

  • NEW SOUTH WALES - Saturday 24 May, Sydney ( Community Day, World Endometriosis Congress). (Time TBC)

    Please email INFO@ACENDO.COM.AU to register your interest and recieve updates.

WORLD CONGRESS ON ENDOMETRIOSIS:

SYDNEY 21 - 21 MAY, 2024

Hosted by the World Endometriosis Society, this truly global event will advance the understanding of patient treatment, patient care and the causes and consequences of the disease on the lives of countless women. 

The Congress will bring together world leaders in the field to deliver engaging keynote presentations and invited speakers to lead seminar and symposia sessions, in addition to Pre-Congress Workshops, free paper and poster presentations. An innovative program has been designed to inform, stimulate discussion and collaboration across clinical, scientific and allied health professionals.

Learn more here: https://www.wce2025.com.au

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