ABOUT US
It all begins with an idea.
WHO WE ARE
The Australian Coalition for Endometriosis (ACE) is Australia’s peak body for endometriosis and pelvic pain, uniting patients, healthcare professionals, researchers, and advocacy organisations. We drive national collaboration, influence policy, and promote research investment to improve diagnosis, treatment, and support for the 1 in 7 Australians affected by endometriosis and pelvic pain.
Through strong partnerships with health professionals, government, and community organisations, ACE empowers those affected and advocates for meaningful, systemic change. In collaboration with our members, ACE led the development of the world’s first National Action Plan for Endometriosis.
WHAT WE DO
In March 2024, ACE was formally recognised and funded by the Australian Government as the national peak body for endometriosis. Under this grant, our role is to:
Provide national leadership and representation for the endometriosis and pelvic pain community.
Serve as a repository of knowledge and sector expertise.
Inform the health sector on Australian Government health priorities.
Provide advice and feedback to government on policies and initiatives.
HOW WE DO IT
Our inclusive membership model welcomes individuals, organisations, health professionals, researchers, and anyone with an interest in endometriosis and pelvic pain. Historically, only a select few had “a seat at the table.” ACE changes that by ensuring every voice counts and by amplifying the collective voice of our community.
We:
Share member updates, research, events, and resources.
Disseminate current knowledge to inform policy, practice, and public awareness.
Build collaborative momentum across the sector rather than relying on one single voice.
Roundtable Priority Setting
Our “Roundtable Priority Setting” events invite participation from consumers, families, clinicians, researchers, advocates, industry, and government. These events identify the real-world priorities that matter to Australians and shape our formal advice to government. ACE then collates the outcomes into a national public report of key themes and actions.
WHAT OUR FUNDING SUPPORTS
Through Commonwealth funding, ACE undertakes a broad range of activities, including:
Roundtable consultations
Public reports
Sector engagement and secretariat coordination
Newsletters, webinars, and knowledge-sharing publications
These efforts contribute to strengthening the national workforce and improving the quality of care for people with endometriosis and pelvic pain.
Note: Endometriosis Australia also received funding under this agreement to deliver different activities. While originally involved in the formation of ACE, Endometriosis Australia chose to exit the Coalition in 2023.
FUNDING TRANSPARENCY
ACE is funded through a grant provided by the Australian Government. Like most government funding, this grant is delivered in stages, contingent on meeting agreed milestones and outcomes.
Ongoing funding is not guaranteed. We continue to advocate for sustainable support to ensure the voice of the endometriosis and pelvic pain community remains strong and heard. As a peak body, our funding does not fully cover the scope of work required—we remain resourceful, strategic, and focused on where we can make the greatest impact.
ACTIVITY UPDATES
National Roundtables
ACE is currently leading a national roundtable consultation to identify key priorities for endometriosis and pelvic pain in every state and territory. Insights from these consultations will inform our 2025 report to the Australian Government, due in June.
Roundtables have already been held in Victoria, Queensland, and the ACT, with the remaining states and territories scheduled by May 2025.
Want to participate?
Email us at info@acendo.com.au to register your interest.
Webinars, Newsletters & Sector Updates
Stay informed with the latest news from ACE and our members. We share updates on research, policy, events, and global developments in endometriosis and pelvic pain.
[Click here] to access updates or [become a member] to receive regular information direct to your inbox.
Sector Engagement
On 24 May 2024, ACE hosted the Parliamentary Friends of Endometriosis Gathering at Parliament House, Canberra.
Speakers included Assistant Minister for Health Ged Kearney MP and Opposition Leader Peter Dutton MP, both of whom expressed bipartisan support for advancing care and support for those affected.
ACE Chair Jessica Taylor led the event alongside Parliamentary Friends of Endometriosis Co-Chairs, Lisa Chesters MP and Nola Marino MP and members who could attend. The event highlighted the progress made and called for continued commitment to national strategic action.
